Open Data and CFS/ME – A PACE Odyssey Part 1

Writing in STAT last week, Julie Rehmeyer discussed the release of raw data from the PACE study, a clinical trial which has long been controversial amongst the very population it studied: people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME).

Rehmeyer, a CFS/ME patient herself, reports:

Under court order, the [PACE] study’s authors for the first time released their raw data earlier this month. Patients and independent scientists collaborated to analyze it and posted their

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